The way in which the results of community-based participatory research are presented is extremely important, both for reasons of justice and cultural sensitivity and to ensure that they not unnecessarily badly received.
Stephen T. Miller, MD and Rexann G. Pickering, PhD, CIP, RN
Investigators must determine whether patient consent forms for medical care include the provision that registries for patients with particular medical conditions may be made or electronic data searches may be performed.
Anne-Marie Laberge, MD, PhD and Wylie Burke, MD, PhD
Physicians and counselors must address the importance of communicating genetic test results to family members in the pre-test counseling and informed-consent processes prior to testing.
Diagnosing a child with borderline signs of Asperger disorder can be a gateway to needed interventions and services and also a label that stigmatizes or influences the child’s development.
Physicians’ ethical obligations to disclose conflicts of interest to patients and to obtain their informed consent for treatment are particularly critical when proposed treatments are experimental.