Amy Scharf(理学硕士), Louis Voigt(医学博士), Santosha Vardhana(医学博士、哲学博士), Konstantina Matsoukas(图书情报硕士), Lisa M. Wall(哲学博士、注册护士、临床护理专家、高级肿瘤临床护理专家、已获认证的医疗保健伦理顾问), Maria Arevalo(注册护士、肿瘤专科护士), and Lisa C. Diamond(医学博士、公共卫生硕士)
AMA J Ethics. 2021;E97-108. doi:
10.1001/amajethics.2021.97.
Amy Schart, MS, Louis Voigt, MD, Santosha Vardhana, MD, PhD, Konstantina Matsoukas, MLIS, Lisa M. Wall, PhD, RN, CNS, AOCNS, HEC-C, María Arévalo, RN, OCN, and Lisa C. Diamond, MD, MPH
AMA J Ethics. 2021;E97-108. doi:
10.1001/amajethics.2021.97.
Amy Scharf, MS, Louis Voigt, MD, Santosha Vardhana, MD, PhD, Konstantina Matsoukas, MLIS, Lisa M. Wall, PhD, RN, CNS, AOCNS, HEC-C, Maria Arevalo, RN, OCN, and Lisa C. Diamond, MD, MPH
Patients’ cultural, religious, and social norms deserve respect, but some decisions’ effects on patients’ outcomes can be unjust and ethically troubling.
AMA J Ethics. 2021;23(2):E97-108. doi:
10.1001/amajethics.2021.97.
In treating children with autism, physicians should reframe the common dynamic in which the family wants medication that the doctor is withholding to focus instead on the family’s and physician’s share goal—the patient’s well-being.
AMA J Ethics. 2015;17(4):299-304. doi:
10.1001/journalofethics.2015.17.4.ecas1-1504.
Physicians should recognize that patients’ beliefs may cause them to have non-medical explanations for their illnesses and that shared explanations should be negotiated if treatment plans are to be successful.
Physicians should demonstrate compassion when the parent of an ill child asks the physician for his or her personal opinion regarding the parents' choice to continue experimental treatment when the prognosis is not good.
Physicians who treat children with Down's syndrome should ensure that their parents fully understand the children's capabilities and long-term prognosis and counsel them on the appropriate actions to take regarding their children's care.