Some disability advocates take issue with the “normalization” goals of the medical model of rehabilitation, but expressions of that position can be dismissive of rehabilitationists’ efforts to remediate oppressive functional deficits.
AMA J Ethics. 2015;17(6):562-567. doi:
10.1001/journalofethics.2015.17.6.msoc1-1506.
The first women’s movement in the mid-nineteenth century endorsed anesthesia during childbirth and some of the very patterns of obstetric practice that became anathema to the natural childbirth movement a century later.
AMA J Ethics. 2015;17(3):253-257. doi:
10.1001/journalofethics.2015.17.3.msoc1-1503.
Instead of succumbing to the urge to portray cultural differences as a dichotomy between clashing opposites, we should endeavor to note our common humanity, acknowledge the plurality of viewpoints within a given culture, and appreciate that cultures can evolve without being untrue to themselves.
Physicians should go beyond basic medical diagnosis and treatment to offer support to families about the gamut of social and emotional issues that are involved with caring for a severely disabled child.
Presymptomatic genetic testing for neurodegenerative diseases can help patients make effective treatment decisions, but the medical profession needs to ensure that the increasing use of the tests is done responsibly.