The need for improved health care transition (HCT) for youth with autism spectrum disorder (ASD) can be met with training for health care professionals, financial counseling for parents of children with ASD, and increased vocational training and opportunities for youth with ASD.
AMA J Ethics. 2015;17(4):342-347. doi:
10.1001/journalofethics.2015.17.4.pfor1-1504.
Evaluation of an autism curriculum for pediatric residents yielded significant short-term gains in residents’ objective and self-assessed knowledge of autism spectrum disorder diagnosis and treatment.
AMA J Ethics. 2015;17(4):318-322. doi:
10.1001/journalofethics.2015.17.4.medu1-1504.
Transparency about teaching hospitals’ educational mission respects patient autonomy and aligns patients’ interests with those of trainees and the public.
AMA J Ethics. 2017;19(6):537-543. doi:
10.1001/journalofethics.2017.19.6.ecas1-1706.
Forcing parents to participate in treatment is unlikely to succeed. Seeking to optimize the therapeutic alliance between family and pediatrician is more likely to achieve the desired outcome—the child’s short- and long-term well-being.
Physicians have an ethical responsibility to be functionally literate in health statistics and able to explain information such as a test’s positive predictive value to their patients.
Physicians need to help surrogate decision makers to make treatment and end-of-life decisions for those with severe neurological damage by proving a realistic prognosis and maintain strong lines of communication.
A case that describes how treatment decisions for a seriously ill baby should consider the advice and recommendations of the medical team as well as the parental preferences for the child's care.