Lydia Smeltz joins Ethics Talk to discuss her article, coauthored with Drs Susan M. Havercamp and Lisa Meeks: “Aspiring to Disability Consciousness in Health Professions Training.”
My most important job is to help my patients (and their families) who are depressed, grieving, or angry following severe injury or illness to imagine possible narratives for the next chapter of life.
AMA J Ethics. 2015;17(6):500-505. doi:
10.1001/journalofethics.2015.17.6.ecas1-1506.
Dr Jonathan Treem joins Ethics Talk to discuss his article, coauthored with Drs Joel Yager and Jennifer L. Gaudiani: “A Life-Affirming Palliative Care Model for Severe and Enduring Anorexia Nervosa.”
Bias toward allopathic medicine in the research funding and publication of study results makes it difficult for physicians and others to find accurate data about the efficacy of non-Western, nonallopathic treatments.
Clinical trials for the blood substitute PolyHeme exposed the possibility for ambiguous interpretation of the FDA’s waiver of informed consent for emergency research.
Support for the argument that preimplantation genetic diagnosis followed by selection and implantation of an embryo with a trait that many consider a disability, e.g., deafness, achondroplasia, does not harm the child that develops from the implanted embryo.
Two bioethicists argue that prenatal disability screening promotes negativity toward the disabled and gives parents the ability to selectively form families.
A philosophy professor argues that prenatal genetic testing allows potentially painful afflictions to be discovered prior to birth and does not unjustly discriminate against disabled people.
A mother of a prematurely born son reviews several quality-of-life research studies that highlight the disparity between self-reported quality of life and physician estimates of quality of life.