Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
A lack of consensus guidelines or a belief that current evidence does not support such guidelines might be justified if a clinician expresses a commitment to patient-centered care and shared decision making.
AMA J Ethics. 2018; 20(11):E1007-1016. doi:
10.1001/amajethics.2018.1007.
Parents’ false beliefs can be engaged respectfully to motivate deliberations about shared values and goals, but refusal of clinically indicated treatment could warrant reporting.
AMA J Ethics. 2018; 20(11):E1017-1024. doi:
10.1001/amajethics.2018.1017.
Stephanie L. Samuels, MD and Wilma C. Rossi, MD, MBE
When a parent resists a physician's recommendation for a pediatric patient, physician-parent partnering can promote the patient's best interest and help encourage lifestyle changes.
AMA J Ethics. 2018; 20(12):E1126-1132. doi:
10.1001/amajethics.2018.1126
Global health outreach programs can risk benefitting students from resource-rich areas of the world more than the patients in resource-poor areas of the world. This month’s episode of Ethics Talk explores an alternative to academic health center-based health outreach programs.
