Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
Using crowdsourced information in health professions education can help motivate critical appraisal, question asking, and evidence evaluation skill development, especially among “digital natives.”
AMA J Ethics. 2018; 20(11):E1033-1040. doi:
10.1001/amajethics.2018.1033.
Medical students’ moral distress about end-of-life cases can be reduced through ethics consultation and ethics rounds, narrative reflection, and mentoring.
AMA J Ethics. 2017; 19(6):585-594. doi:
10.1001/journalofethics.2017.19.6.stas1-1706.
The convening power of clinical ethics committees stems from their reputation for fairness and procedural legitimacy in addressing and resolving ethically complex cases.
AMA J Ethics. 2016; 18(5):540-545. doi:
10.1001/journalofethics.2016.18.5.msoc2-1605.
When patients are unable to express their wishes and do not have surrogates or advance directives, which and whose values should inform decision making for them? We discuss ethical complexities of caring for unrepresented patients.