Transitions in relabeling personalized medicine as precision medicine, precision health, or wellness genomics reflect shifting the locus of responsibility for health from individuals to clinicians and in shifting focus from genetic risk to genetic enhancement.
AMA J Ethics. 2018;20(9):E881-890. doi:
10.1001/amajethics.2018.881.
Graphic pathographies can illustrate how overreliance on statistics can obscure the clinical relevance of patients’ experiences of anxiety when they’re presented with prognoses.
AMA J Ethics. 2018;20(9):E897-901. doi:
10.1001/amajethics.2018.897.
Clinicians can practice disability humility by developing social understandings of disability. This can help clinicians improve communication and express respect for patients’ authority about their experiences.
AMA J Ethics. 2018;20(12):E1181-1187. doi:
10.1001/amajethics.2018.1181
Michele C. Gornick, PhD, MA and Brian J. Zikmund-Fisher, PhD, MA
How information is provided can change a choice. Decision science helps reveal affective forecasting errors and can generate choices congruent with patients’ and families’ values.
AMA J Ethics. 2019;21(10):E906-912. doi:
10.1001/amajethics.2019.906.
Decision making in health care demands that we balance multiple considerations, like quality of life, statistics, and how different options could affect others. Dr Brian Zikmund-Fisher shares his own experience as a patient and explains how decision science can help us navigate ethically complex health decisions.
Drawing on the film Wonder, this article examines how a narrative of community acceptance offers sustaining relationships for people with unusual facial appearance.
AMA J Ethics. 2019;21(11):E1003-1008. doi:
10.1001/amajethics.2019.1003.