Mary Anderlik Majumder, JD, PhD and Christi J. Guerrini, JD
Amendments to the Common Rule and Health Insurance Portability and Accountability Act (HIPAA) raise questions about broad consent and sale of health data.
AMA J Ethics. 2016;18(3):288-298. doi:
10.1001/journalofethics.2016.18.3.pfor5-1603.
Mark Gilbert, PhD, Leanne Picketts, MEd, Anna MacLeod, PhD, and Wendy A. Stewart, MD, MMEd, PhD
This study offers an arts-based tool set capable of being delivered within the familiar medical education setting and established structure of the OSCE.
AMA J Ethics. 2022;24(7):E556-562. doi:
10.1001/amajethics.2022.556.
Sophia Miao, MD and Wendy A. Stewart, MD, MMEd, PhD
This pilot study used phenomenology combined with quantitative measures of self-esteem and self-efficacy to explore influences of storytelling through lyrical and musical composition on youth self-concept.
AMA J Ethics. 2022;24(7):E576-583. doi:
10.1001/amajethics.2022.576.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Cynthia E. Schairer, PhD, Caryn Kseniya Rubanovich, MS, and Cinnamon S. Bloss, PhD
Questions about data privacy need to be addressed when research institutions negotiate with companies developing mobile health applications. Commercial terms of use and data sharing notifications should be reviewed before use in human subject research settings.
AMA J Ethics. 2018;20(9):E864-872. doi:
10.1001/amajethics.2018.864.