Chris Feudtner, MD, PhD, MPH, David Munson, MD, and Wynne Morrison, MD
The way that we choose how to frame the conversation with parents about halting or continuing such therapy for their children who will not recover has special importance in medicine and in society.
Physicians should demonstrate compassion when the parent of an ill child asks the physician for his or her personal opinion regarding the parents' choice to continue experimental treatment when the prognosis is not good.
Pediatricians should be aware of the cultural issues surrounding body image when they counsel certain patients and their parents about the importance of weight loss and the related health concerns.
Physicians who treat children with Down's syndrome should ensure that their parents fully understand the children's capabilities and long-term prognosis and counsel them on the appropriate actions to take regarding their children's care.
Parents' ability to make medical decisions for their children can be limited by state law if it is determined that the child's best interest is not being met.
Medical students and residents should be taught clear principles to help them educate families about their children's nutritional requirements from the age of birth in order to prevent childhood obesity.
Physicians should go beyond basic medical diagnosis and treatment to offer support to families about the gamut of social and emotional issues that are involved with caring for a severely disabled child.