Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018; 20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Emily L. Evans, PhD, MPH and Danielle Whicher, PhD, MHS
Clinical decision support systems leverage data generated in the course of standard clinical care to improve clinical practice. They need to ensure privacy and quality of patients’ data, but must also allow queries of electronic health records.
AMA J Ethics. 2018; 20(9):E857-863. doi:
10.1001/amajethics.2018.857.
After years of funding disease-specific treatment, donation trends have shifted to support broader health systems infrastructure development. A remaining challenge is how to sustain antiretroviral therapy (ART) for patients in resource-poor regions.
AMA J Ethics. 2016; 18(7):681-690. doi:
10.1001/journalofethics.2016.18.7.ecas3-1607.
Since 1995, the American Academy of Neurology has provided guidelines for brain death determination, but nationwide adherence to these guidelines has been incomplete.
AMA J Ethics. 2020; 22(12):E1027-1032. doi:
10.1001/amajethics.2020.1027.
Death’s legal definition must be responsive to advances in technology, and it must delineate between life and death. Knowing where to draw the line is difficult.
AMA J Ethics. 2020; 22(12):E1055-1061. doi:
10.1001/amajethics.2020.1055.