When a seriously ill mature minor and his parent disagree about his receiving an experimental intervention, who should decide what treatment he will receive?
Patients who have been encouraged to think of themselves as consumers and a medical system that is driven by individual demands rather than big-picture planning can undermine fairness in the distribution of vaccines.
Conducting community-based research in the community where one resides demands careful planning, sensitivity to community members’ privacy, and a strong commitment to full and respectful communication.
The differences between CBPR and traditional research have been enumerated, but how to overcome them is still up for discussion, collaboration with community members is advocated, and examples are given.
PSOs are not required to share their data, which limits the ability to achieve a much-needed national perspective. Regardless, the are a step in the right direction.
A much-anticipated attempt to rectify the many shortcomings in public health statutory law and regulations, the Turning Point Act resulted in sweeping overhauls of public health infrastructure and legislation in several states.
Elizabeth Lee Daugherty, MD, MPH and Douglas B. White, MD, MA
Opportunities to advance scientific knowledge may arise during humanitarian crises, but their presence does not justify suspension of the ethical foundations governing human subjects research.