Conducting community-based research in the community where one resides demands careful planning, sensitivity to community members’ privacy, and a strong commitment to full and respectful communication.
The differences between CBPR and traditional research have been enumerated, but how to overcome them is still up for discussion, collaboration with community members is advocated, and examples are given.
Elizabeth Lee Daugherty, MD, MPH and Douglas B. White, MD, MA
Opportunities to advance scientific knowledge may arise during humanitarian crises, but their presence does not justify suspension of the ethical foundations governing human subjects research.
People with autism have a right to access “autism-friendly” theatrical performances. Theater-based treatment programs can help remove stigma and cultivate participants’ reciprocal social communication skills.
AMA J Ethics. 2016;18(12):1232-1240. doi:
10.1001/journalofethics.2016.18.12.imhl1-1612.
Diagnosing a child with borderline signs of Asperger disorder can be a gateway to needed interventions and services and also a label that stigmatizes or influences the child’s development.
Does a surgeon’s complication rate in a randomized controlled trial constitute a “significant new finding” that must be reported to patients during the consent process?
A review of research that found that physicians disciplined by state medical boards were as much as three times more likely than controls to have had a record of unprofessional behavior in medical school.
Suggests to medical students what forms of self-disclosure are acceptable during clinical encounters and when self-disclosure might be interpreted by patients as taking attention away from them.