The differences between CBPR and traditional research have been enumerated, but how to overcome them is still up for discussion, collaboration with community members is advocated, and examples are given.
The revisions balance a growing understanding of gender identity disorders and societal views with the need to retain conditions that benefit from intervention and the removal of which would hamper patients’ ability to receive medical treatment.
Assigning community based on race suggests that phenotype reveals something consistent about biology that is equal in standing to factors like weight, dietary habits, smoking history, and whether or not you had rheumatic fever as a child.
Elizabeth Lee Daugherty, MD, MPH and Douglas B. White, MD, MA
Opportunities to advance scientific knowledge may arise during humanitarian crises, but their presence does not justify suspension of the ethical foundations governing human subjects research.
Patricia D. Quigley, MD and Megan A. Moreno, MD, MSEd, MPH
Maintaining an adolescent’s confidentiality while answering his or her parents’ questions about their child’s change in mood and behavior can be challenging.
Loss of personal integrity, the emotional and psychological costs of “pronoun switching,” and actively managing one’s presentation can be time-consuming and exhausting.