When a seriously ill mature minor and his parent disagree about his receiving an experimental intervention, who should decide what treatment he will receive?
Though there are channels through which terminally ill patients can access some experimental drugs that have not yet received FDA approval for marketing to the public, in general those drugs must already be proven safe and effective.
When a seriously ill mature minor and his parent disagree about his receiving an experimental intervention, who should decide what treatment he will receive?
Jalayne J. Arias, JD, MA and Kathryn L. Weise, MD, MA
Even when external factors such as nonaccidental injury weigh heavily on clinicians' perceptions, they should not lose focus on the patient's best interest when deciding whether to continue or withdraw treatment.
Jessie Kimbrough-Sugick, MD, MPH, Jessica Holzer, MA, and Eric B. Bass, MD, MPH
Researchers who approach community partners with an agenda already in hand are missing the point of the community-based participatory research enterprise: developing priorities for study together.
By privileging traditional research methods in forms for research protocol approval, IRBs can unknowingly allow community partners to be harmed in CBPR. Changes to the language can help ensure appropriate sensitivity and community involvement.
Lynn Monrouxe, PhD, Malissa Shaw, MSc, PhD, and Charlotte Rees, MEd, PhD
Students’ decision making about ethical dilemmas can be supported via education, faculty development, and structures for reporting professionalism lapses.
AMA J Ethics. 2017; 19(6):568-577. doi:
10.1001/journalofethics.2017.19.6.medu1-1706.
Monica Peek, MD, MPH, MSc, Bernard Lo, MD, and Alicia Fernandez, MD
Gender-concordant care requests involve principles of beneficence, respect, and fairness and, when they occur on rotations, require a team-based approach.
AMA J Ethics. 2017; 19(4):332-339. doi:
10.1001/journalofethics.2017.19.4.ecas2-1704.
CBP researchers are challenged to think strategically about ways to convey their accomplishments and educate their non-CBPR peers about the nature of their research, processes not required of traditional researchers.