Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
Grace Kim, Uriel Sanchez Molina, and Altaf Saadi, MD, MSHPM
Undocumented patients can be subject to discrimination, reporting, detention, or deportation in violation of the Health Insurance Portability and Accountability Act, so what goes in the record is critical.
AMA J Ethics. 2019; 21(1):E8-16. doi:
10.1001/amajethics.2019.8.
Being undocumented is a risk factor for mental illness, and immigration status relates prominently to overall health. That’s enough to consider it protected health information under the Health Insurance Portability and Accountability Act Privacy Rule.
AMA J Ethics. 2019; 21(1):E32-37. doi:
10.1001/amajethics.2019.32.
Undocumented patients are a vulnerable population, since they often lack access to health insurance and can be afraid to present for care. This month on Ethics Talk, we discuss challenges in caring for undocumented patients with Dr. Mark Kuczewski, Scott Schweikart, and Dr. Nancy Berlinger.
Streamlining US health care business has raised unique privacy concerns. Bills and explanations of benefits contain protected health information that could be disclosed to someone other than the patient.
AMA J Ethics. 2016; 18(3):279-287. doi:
10.1001/journalofethics.2016.18.3.pfor4-1603.