Advance directives, substituted judgment, and the best-interest standard all have limitations that constrain their usefulness in making medical decisions for patients who cannot choose for themselves.
Patricia M. Davidson, PhD, RN, Cynda Hylton Rushton, PhD, RN, Jennifer Dotzenrod, MPP, Christina A. Godack, MA, Deborah Baker, DNP, CRNP, and Marie N. Nolan, PhD, RN
The nursing profession can become more inclusive by fostering a supportive culture, resilience, and realistic expectations for people with disabilities.
AMA J Ethics. 2016;18(10):1034-1040. doi:
10.1001/journalofethics.2016.18.10.msoc1-1610.
Tom Alsaigh, MD, Laura Nicholson, MD, PhD, and Eric Topol, MD
Clinicians should have a working understanding of gene editing, controversy surrounding its use, and its far-reaching clinical and ethical implications.
AMA J Ethics. 2019;21(12):E1089-1097. doi:
10.1001/amajethics.2019.1089.
Advance directives do not always resolve questions about the best care for patients who no longer have decision-making capacity; physicians and patient surrogates can take alternative approaches to arrive at the best care decision.
Paula Tironi, JD, LLM and Monique M. Karaganis, MD
While parents often have legal authority to make decisions regarding pediatric palliative care, federal and state statutory and case laws, like CAPTA, impose significant restrictions on that authority.
Unclear regulations and informal data gathering on immigrants who receive or donate organs can cause mistrust and suspicion of the organ allocation system and affect donation rates.
Immigrant patients are often bewildered when they need to seek health care in the U.S., and that care usually comes from physicians who are unsympathetic to their plight.