Kyle B. Brothers, MD, PhD and Esther E. Knapp, MD, MBE
Direct-to-consumer genetic testing requires that physicians share decision making with patients, not order unnecessary tests or interventions, and refer to genetic specialists when necessary.
AMA J Ethics. 2018; 20(9):E812-818. doi:
10.1001/amajethics.2018.812.
Mandatory genetic testing of health care professionals could help structure health care organizations’ responses to a pandemic. Patients and more susceptible employees can benefit, and these benefits must be weighed against concerns about fairness, autonomy, genetic privacy, and potential loss of employment opportunities.
AMA J Ethics. 2018; 20(9):E819-825. doi:
10.1001/amajethics.2018.819.
Holly K. Tabor, PhD and Aaron Goldenberg, PhD, MPH
Rare genetic disease research has something to teach precision medicine about addressing some patients’ limited access to treatment. Health disparities exacerbated by high costs and limited availability of drugs can, perhaps, be mitigated when patient activism accelerates drug development.
AMA J Ethics. 2018; 20(9):E834-840. doi:
10.1001/amajethics.2018.834.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018; 20(9):E849-856. doi:
10.1001/amajethics.2018.849.
The authors address the medical ethics question of whether autopsy is necessary from Cartesian and sociocultural perspectives and how to obtain consent.
AMA J Ethics. 2016; 18(8):771-778. doi:
10.1001/journalofethics.2016.18.8.ecas2-1608.
Cytopathologists frequently interact directly with patients at their bedsides to perform fine needle aspiration procedures. When, if ever, should cytopathologists share preliminary diagnostic impressions directly with patients?
AMA J Ethics. 2016; 18(8):779-785. doi:
10.1001/journalofethics.2016.18.8.ecas3-1608.
Rehabilitation environments are structured to accommodate cross-disciplinary patient care. In this story, one physician shares what she learned in a hospital playroom about rehabilitation, interprofessional collaboration, and patient-centered service delivery.
AMA J Ethics. 2016; 18(9):960-964. doi:
10.1001/journalofethics.2016.18.9.mnar1-1609.
Thoughtful design can welcome patients’ families’ roles in promoting healing. At the same time, clinicians’ need for functionality and privacy is critical. How ought these considerations be balanced in designing the spaces where patient care takes place?
AMA J Ethics. 2016; 18(1):73-76. doi:
10.1001/journalofethics.2017.18.1.sect1-1601.
In treating children with autism, physicians should reframe the common dynamic in which the family wants medication that the doctor is withholding to focus instead on the family’s and physician’s share goal—the patient’s well-being.
AMA J Ethics. 2015; 17(4):299-304. doi:
10.1001/journalofethics.2015.17.4.ecas1-1504.
Jason D. Hall, JD, Lee A. Goeddel, MD, MPH, and Thomas R. Vetter, MD, MPH
In the perioperative surgical home, the anesthesiologist coordinates care with other team members to provide seamless continuity from preoperative evaluation to postoperative care.
AMA J Ethics. 2015; 17(3):243-247. doi:
10.1001/journalofethics.2015.17.3.stas2-1503.