A guardian’s request to sterilize a woman with intellectual disabilities is not ethically justifiable unless the woman assents and it is to her benefit.
AMA J Ethics. 2016; 18(4):365-372. doi:
10.1001/journalofethics.2016.18.4.ecas2-1604.
Ashok, a Nepali man with neurofibromatosis, has undergone 3 surgeries to remove facially disfiguring tumors. His portrait is one of over 200 exhibited by this artist-researcher and mother.
AMA J Ethics. 2020; 22(6):E513-524. doi:
10.1001/amajethics.2020.513.
Good design can help transform health care, in part because it involves drawing on a wide range of perspectives and experiences. This month, we talked with a health care designer, a patient advocate, and a physician to learn how “design thinking” can be successfully incorporated into health care systems and applications.
Michael McKee, MD, MPH, Ben Case, Maureen Fausone, Philip Zazove, MD, MM, Alicia Ouellette, JD, and Michael D. Fetters, MD, MPH, MA
For reasons of medical ethics, medical schools should embrace functional technical standards that focus on the capabilities of students with disabilities.
AMA J Ethics. 2016; 18(10):993-1002. doi:
10.1001/journalofethics.2016.18.10.medu1-1610.
Cynthia E. Schairer, PhD, Caryn Kseniya Rubanovich, MS, and Cinnamon S. Bloss, PhD
Questions about data privacy need to be addressed when research institutions negotiate with companies developing mobile health applications. Commercial terms of use and data sharing notifications should be reviewed before use in human subject research settings.
AMA J Ethics. 2018; 20(9):E864-872. doi:
10.1001/amajethics.2018.864.
The law and medical ethics demand reconsideration of inflexible technical standards that are vulnerable to litigation under disability discrimination laws.
AMA J Ethics. 2016; 18(10):1010-1016. doi:
10.1001/journalofethics.2016.18.10.hlaw1-1610.