Holly K. Tabor, PhD and Aaron Goldenberg, PhD, MPH
Rare genetic disease research has something to teach precision medicine about addressing some patients’ limited access to treatment. Health disparities exacerbated by high costs and limited availability of drugs can, perhaps, be mitigated when patient activism accelerates drug development.
AMA J Ethics. 2018; 20(9):E834-840. doi:
10.1001/amajethics.2018.834.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018; 20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Emergency medical consultations share with other emergencies the need for prompt action, potentially without information or tools ordinarily available.
AMA J Ethics. 2016; 18(5):479-484. doi:
10.1001/journalofethics.2016.18.5.ecas1-1605.
Does a patient’s request not to have a diagnosis included in her health record undermine a clinician’s capacity to provide clinically and ethically appropriate treatment?
AMA J Ethics. 2016; 18(6):579-586. doi:
10.1001/journalofethics.2016.18.6.ecas2-1606.
The Holocaust and the racial hygiene doctrine that helped rationalize it still overshadow contemporary debates about using gene editing for disease prevention.
AMA J Ethics. 2021; 23(1):E49-54. doi:
10.1001/amajethics.2021.49.
Alden M. Landry, MD, MPH, Rose L. Molina, MD, MPH, Regan Marsh, MD, MPH, Emma Hartswick, Raquel Sofia Sandoval, Nora Osman, MD, and Leonor Fernandez, MD
Adapting content in response to new science is common, but educators can struggle to offer current questions that matter to students.
AMA J Ethics. 2021; 23(2):E127-131. doi:
10.1001/amajethics.2021.127.