Clara C. Hildebrandt, MD and Jonathan M. Marron, MD, MPH
Gene editing with CRISPR/Cas9 raises concerns about equitable access to therapies that could limit research participation by minority group members. These concerns can be addressed through public education, transparency, and stakeholder partnerships.
AMA J Ethics. 2018;20(9):E826-833. doi:
10.1001/amajethics.2018.826.
Holly K. Tabor, PhD and Aaron Goldenberg, PhD, MPH
Rare genetic disease research has something to teach precision medicine about addressing some patients’ limited access to treatment. Health disparities exacerbated by high costs and limited availability of drugs can, perhaps, be mitigated when patient activism accelerates drug development.
AMA J Ethics. 2018;20(9):E834-840. doi:
10.1001/amajethics.2018.834.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
This narrative information graphic contextualizes the lack of current maternal morbidity and mortality data in the United States since the Dobbs v Jackson Women’s Health Organization decision in 2022.
AMA J Ethics. 2024;26(1):E92-93. doi:
10.1001/amajethics.2024.92.
Dr Gillian R. Schmitz joins Ethics Talk to discuss her article, coauthored with Dr Robert W. Strauss: “What Should Students and Trainees Be Taught About Turfing and Where Patients Belong?”
Makenzie Doubek joins Ethics Talk to discuss her article, coauthored with Scott J. Schweikart: “Why Should Physicians Care About What Law Says About Turfing and Dumping Patients?”
Jonathan S. Towner, PhD, Luke Nyakarahuka, PhD, MPH, BVM, and Patrick Atimnedi, BVM
Marburg virus is carried by the Egyptian rousette bat, a common cave-dwelling fruit bat endemic to sub-Saharan Africa, where populations can exceed 50 000.
AMA J Ethics. 2024;26(2):E109-115. doi:
10.1001/amajethics.2024.109.