We consult our doctors for expert medical advice, not phenomenological analysis, but perhaps a wide gulf ought not separate empirical science and research from phenomenological reflection and analysis on illness.
Framing discussions of ALS around the disease rather than the psychologically complex person with the disease focuses attention on symptoms and imagined outcomes rather than patients’ coping strategies and quality of life.
AMA J Ethics. 2015;17(6):530-534. doi:
10.1001/journalofethics.2015.17.6.nlit2-1506.
Narrative ethics derives its ethical force from continually comparing and critiquing new narratives against existing narratives that guide the way we live.