Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Emily L. Evans, PhD, MPH and Danielle Whicher, PhD, MHS
Clinical decision support systems leverage data generated in the course of standard clinical care to improve clinical practice. They need to ensure privacy and quality of patients’ data, but must also allow queries of electronic health records.
AMA J Ethics. 2018;20(9):E857-863. doi:
10.1001/amajethics.2018.857.
Cynthia E. Schairer, PhD, Caryn Kseniya Rubanovich, MS, and Cinnamon S. Bloss, PhD
Questions about data privacy need to be addressed when research institutions negotiate with companies developing mobile health applications. Commercial terms of use and data sharing notifications should be reviewed before use in human subject research settings.
AMA J Ethics. 2018;20(9):E864-872. doi:
10.1001/amajethics.2018.864.
After years of funding disease-specific treatment, donation trends have shifted to support broader health systems infrastructure development. A remaining challenge is how to sustain antiretroviral therapy (ART) for patients in resource-poor regions.
AMA J Ethics. 2016;18(7):681-690. doi:
10.1001/journalofethics.2016.18.7.ecas3-1607.
Amy Scharf(理学硕士), Louis Voigt(医学博士), Santosha Vardhana(医学博士、哲学博士), Konstantina Matsoukas(图书情报硕士), Lisa M. Wall(哲学博士、注册护士、临床护理专家、高级肿瘤临床护理专家、已获认证的医疗保健伦理顾问), Maria Arevalo(注册护士、肿瘤专科护士), and Lisa C. Diamond(医学博士、公共卫生硕士)
AMA J Ethics. 2021;E97-108. doi:
10.1001/amajethics.2021.97.
Amy Schart, MS, Louis Voigt, MD, Santosha Vardhana, MD, PhD, Konstantina Matsoukas, MLIS, Lisa M. Wall, PhD, RN, CNS, AOCNS, HEC-C, María Arévalo, RN, OCN, and Lisa C. Diamond, MD, MPH
AMA J Ethics. 2021;E97-108. doi:
10.1001/amajethics.2021.97.