Kyle B. Brothers, MD, PhD and Esther E. Knapp, MD, MBE
Direct-to-consumer genetic testing requires that physicians share decision making with patients, not order unnecessary tests or interventions, and refer to genetic specialists when necessary.
AMA J Ethics. 2018;20(9):E812-818. doi:
10.1001/amajethics.2018.812.
The case of Johnson v Kokemoor illuminates the conflict between patients’ right to informed consent and clinicians’ need to learn through practice, a conflict that possibly could be resolved through greater transparency about clinicians’ experience or experience-dependent medical fees.
Adaptive, simulation-based Internet training sites with intelligent agents can offer medical students a virtual clinic for learning about the process and multiple outcomes of patient decision making.
A commentary about the need for a physician to communicate in a manner that will encourage honest patient disclosure and motivate behavior change, where necessary.