Laura N. Gitlin, PhD and Nancy A. Hodgson, PhD, RN
As a matter of medical ethics, physicians must address the health care needs of and be advocates for family caregivers of their patients with dementia.
AMA J Ethics. 2016;18(12):1171-1181. doi:
10.1001/journalofethics.2016.18.12.ecas1-1612.
One major difficulty in collecting data on which to base injury prevention strategies is the lack of large epidemiologic studies and comprehensive injury surveillance.
The experience of an English professor dying of ovarian cancer in Margaret Edson’s play Wit shows that both literary and medical discourse obfuscate and objectify rather than promote communication of “simple human truths” that dignify life and death.
AMA J Ethics. 2015;17(9):858-864. doi:
10.1001/journalofethics.2015.17.9.imhl1-1509.
When a seriously ill mature minor and his parent disagree about his receiving an experimental intervention, who should decide what treatment he will receive?
The widespread perception that Jewish law unequivocally demands that all measures must be taken to prolong the life of a dying patient, even if they will prolong dying or cause suffering, is incorrect.
Conducting community-based research in the community where one resides demands careful planning, sensitivity to community members’ privacy, and a strong commitment to full and respectful communication.
The differences between CBPR and traditional research have been enumerated, but how to overcome them is still up for discussion, collaboration with community members is advocated, and examples are given.