Some conditions express symptoms that are neither easily visible nor measurable. Clinicians tend to highly value measurability and empirical verifiability, however. Patients with endometriosis, postconcussive syndrome, many psychiatric illnesses, chronic fatigue syndrome, fibromyalgia, and multiple sclerosis, for example, can suffer disadvantage and injustice during their health care encounters. This issue investigates ethical, clinical, and social stakes of failing to view patients and their caregivers as authoritative knowers about their bodies and illness experiences.
Kim Christiansen discusses her experiences managing limited mobility and chronic pain from a partial spinal cord injury and Dr Natalie Hoff describes good physical therapy care for patients with chronic migraine headaches.
Dr Nat Mulkey and Dr Carl G. Streed Jr join Ethics Talk to discuss their article coauthored with Dr Barbara M. Chubak, "A Call to Update Standard of Care for Children With Differences in Sex Development."