A bioethicist argues that two journal articles about quality of life-adjusted years research oversimplifies the issue and do not take into consideration people's abilities to adapt to disability and disease.
A health economics professor believes more research is needed on quality of life-adjusted years to explore the way we describe health states, the elicitation of patient values, and how to develop methods for obtaining informed general population preferences.
Elly A. Stolk, MSc and Floortje E. van Nooten, MSc
Two medical technology researchers argue that patients' own valuations of their health states may result in devaluation of interventions that can help them.
Physicians should go beyond basic medical diagnosis and treatment to offer support to families about the gamut of social and emotional issues that are involved with caring for a severely disabled child.
The Culture, Narrative, and Medicine course at Loyola University of Chicago's Stritch School of Medicine teaches cultural humility through literature and students' reflective writing.