The way in which the results of community-based participatory research are presented is extremely important, both for reasons of justice and cultural sensitivity and to ensure that they not unnecessarily badly received.
By failing to follow informed consent protocols and regulations, a researcher engaging in CBPR may inflict permanent harm on the participating community and chill future research among disadvantaged populations.
The differences between CBPR and traditional research have been enumerated, but how to overcome them is still up for discussion, collaboration with community members is advocated, and examples are given.
Johanna Shapiro, PhD, Elena Bezzubova, MD, PhD, and Ronald Koons, MD
Exposing medical students to narrative medicine by having them tell and interpret the stories of their patient encounters may help them become more empathic, more present, and more insightful physicians.
Drawing Autism, a collection of drawings and paintings by people diagnosed with autism, demonstrates an array of talent and themes as well as providing insight into the artists and autism spectrum disorder.
AMA J Ethics. 2015;17(4):359-361. doi:
10.1001/journalofethics.2015.17.4.imhl1-1504.
The experience of an English professor dying of ovarian cancer in Margaret Edson’s play Wit shows that both literary and medical discourse obfuscate and objectify rather than promote communication of “simple human truths” that dignify life and death.
AMA J Ethics. 2015;17(9):858-864. doi:
10.1001/journalofethics.2015.17.9.imhl1-1509.