Physicians who treat children with Down's syndrome should ensure that their parents fully understand the children's capabilities and long-term prognosis and counsel them on the appropriate actions to take regarding their children's care.
Increased awareness and improvement in access are needed in order to alleviate the racial disparities that exist with regard to the underutilization of hospice care by African Americans and other ethnic populations.
Parents' ability to make medical decisions for their children can be limited by state law if it is determined that the child's best interest is not being met.