Genetics/Confidentiality Case and Commentary Dec 2019 How Should “CRISPRed” Babies Be Monitored Over Their Life Course to Promote Health Equity? Charis Thompson, PhD Transnational monitoring efforts should focus on safety, defining standard of care, and promoting just access to innovation. AMA J Ethics. 2019;21(12):E1036-1041. doi: 10.1001/amajethics.2019.1036. Policy Forum Aug 2016 Ethical Considerations about EHR-Mediated Results Disclosure and Pathology Information Presented via Patient Portals Kristina A. Davis, MD and Lauren B. Smith, MD AMA J Ethics. 2016;18(8):826-832. doi: 10.1001/journalofethics.2016.18.8.pfor1-1608. Policy Forum Mar 2016 Shedding Privacy Along with our Genetic Material: What Constitutes Adequate Legal Protection against Surreptitious Genetic Testing? Nicolle K. Strand, JD, MBioethics Law doesn’t always adequately address unauthorized uses of individuals’ DNA. Ethics can help establish legal privacy protections that work. AMA J Ethics. 2016;18(3):264-271. doi: 10.1001/journalofethics.2016.18.3.pfor2-1603. State of the Art and Science Nov 2012 Cancer Gene Sequencing: Ethical Challenges and Promises Siddhartha Devarakonda, MD, Ramaswamy Govindan, MD, and Peter S. Hammerman, MD, PhD Virtual Mentor. 2012;14(11):868-872. doi: 10.1001/virtualmentor.2012.14.11.stas1-1211. Case and Commentary Aug 2012 Genetic Profiling of Medical Students John Mahoney, MD Virtual Mentor. 2012;14(8):616-621. doi: 10.1001/virtualmentor.2012.14.8.ecas3-1208. AMA Code Says Aug 2012 AMA Code of Medical Ethics’ Opinion on Disclosure of Patients’ Genetic Test Results AMA Council on Ethical and Judicial Affairs Virtual Mentor. 2012;14(8):627-. doi: 10.1001/virtualmentor.2012.14.8.coet1-1208. Case and Commentary Aug 2012 Informed Consent for Biobank-Dependent Research Jeffrey R. Botkin, MD, MPH Research is often conducted without the knowledge or consent of those whose tissues are banked and poses possible harms to social groups if information about a few members is unscientifically applied to all. Virtual Mentor. 2012;14(8):610-615. doi: 10.1001/virtualmentor.2012.14.8.ecas2-1208. AMA Code Says Jan 2002 The Use of DNA Databanks in Genomic Research Faith Lagay, PhD Virtual Mentor. 2002;4(1):15-18. doi: 10.1001/virtualmentor.2002.4.1.code1-0201.
Case and Commentary Dec 2019 How Should “CRISPRed” Babies Be Monitored Over Their Life Course to Promote Health Equity? Charis Thompson, PhD Transnational monitoring efforts should focus on safety, defining standard of care, and promoting just access to innovation. AMA J Ethics. 2019;21(12):E1036-1041. doi: 10.1001/amajethics.2019.1036.
Policy Forum Aug 2016 Ethical Considerations about EHR-Mediated Results Disclosure and Pathology Information Presented via Patient Portals Kristina A. Davis, MD and Lauren B. Smith, MD AMA J Ethics. 2016;18(8):826-832. doi: 10.1001/journalofethics.2016.18.8.pfor1-1608.
Policy Forum Mar 2016 Shedding Privacy Along with our Genetic Material: What Constitutes Adequate Legal Protection against Surreptitious Genetic Testing? Nicolle K. Strand, JD, MBioethics Law doesn’t always adequately address unauthorized uses of individuals’ DNA. Ethics can help establish legal privacy protections that work. AMA J Ethics. 2016;18(3):264-271. doi: 10.1001/journalofethics.2016.18.3.pfor2-1603.
State of the Art and Science Nov 2012 Cancer Gene Sequencing: Ethical Challenges and Promises Siddhartha Devarakonda, MD, Ramaswamy Govindan, MD, and Peter S. Hammerman, MD, PhD Virtual Mentor. 2012;14(11):868-872. doi: 10.1001/virtualmentor.2012.14.11.stas1-1211.
Case and Commentary Aug 2012 Genetic Profiling of Medical Students John Mahoney, MD Virtual Mentor. 2012;14(8):616-621. doi: 10.1001/virtualmentor.2012.14.8.ecas3-1208.
AMA Code Says Aug 2012 AMA Code of Medical Ethics’ Opinion on Disclosure of Patients’ Genetic Test Results AMA Council on Ethical and Judicial Affairs Virtual Mentor. 2012;14(8):627-. doi: 10.1001/virtualmentor.2012.14.8.coet1-1208.
Case and Commentary Aug 2012 Informed Consent for Biobank-Dependent Research Jeffrey R. Botkin, MD, MPH Research is often conducted without the knowledge or consent of those whose tissues are banked and poses possible harms to social groups if information about a few members is unscientifically applied to all. Virtual Mentor. 2012;14(8):610-615. doi: 10.1001/virtualmentor.2012.14.8.ecas2-1208.
AMA Code Says Jan 2002 The Use of DNA Databanks in Genomic Research Faith Lagay, PhD Virtual Mentor. 2002;4(1):15-18. doi: 10.1001/virtualmentor.2002.4.1.code1-0201.
