Clinical needs of patients with disabilities are seen with the “medical gaze,” a depersonalized lens of evidence-based medicine and of presumed objectivity.
AMA J Ethics. 2023;25(1):E85-87. doi:
10.1001/amajethics.2023.85.
In the past, forced sterilizations violated the autonomy of vulnerable women. Today, measures intended to protect such women from the abuses of the past may in fact hamper their autonomy in a different way.
Parents want their child with severe disabilities to be accorded the same respect a healthy child gets, including a physical exam in the ER to diagnose and perhaps treat a minor illness unrelated to his or her impairments.
Physicians who have adequately informed a competent patient of his or her diagnosis, its meaning, and medically appropriate options should then accept the patient’s informed consent or refusal of treatment.
Two physicians offer commentaries about the use of prenatal predictive testing for a late-onset disease like Huntington's and question whether the pregnant woman should ultimately have the decisional autonomy to determine the quality of life of the unborn child.
Two physicians offer commentaries about the use of prenatal predictive testing for a late-onset disease like Huntington's and question whether the pregnant woman should ultimately have the decisional autonomy to determine the quality of life of the unborn child.